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Useful Links www.kidney.org — website for the national Kidney Foundation www.lewy.net — information about Lewy Body Dementia www.mayohealth.org — Updated medical information everyday from Mayo Clinic. www.psycom.net/depression.central.html — This site is the Internet's central clearinghouse for information on all types of depressive disorders. www.rarediseases.org — National Organization for Rare Diseases offers information on several hundred rare diseases as well as links to other rare disease sites. www.4therapy.com — find a therapist in your area www.adaptive-apparel.com — information and vendor for clothing for the disabled www.agenet.com — information and referral network providing information about products and services that are important to enhancing the quality of life of older adults and their families. www.alzheimers.org — Information about Alzheimer's Disease and related disorders www.alz.org www.aoa.dhhs.gov — Administration on Aging — Information designed for Older Americans and their families www.aoa.dhhs.gov/jpost/gr.caregiving.html — A central source for links to key off-site web sites on areas of interest on aging. www.boomerbasics.com — Everything you need to know about the issues facing you, your children and your parents. www.boomerbooks.com — good book site www.bridge-link.com — Operates primarily as a long-term care and eldercare Care Planning & Resource Program for private sector employers, employees and association members. They maintain the largest database of care services and providers in the country (i.e.: home heath care, assisted living, nursing homes, home chore and repair, etc) www.brain.nwu.edu — Northwestern University Medical School's Department of Neurology. Very informative site offering information on a variety of disorders. www.braintalk.org — Harvard Medical School's site offering information about a large spectrum of brain disorders. Bulletin Boards for participants are available www.caregiving.com — A service that will lead you to the information, services, products and providers that will assist you today and help you plan for tomorrow. Administration on Developmental Disabilities www.acf.dhhs.gov/programs/add/ Americans with Disabilities Act www.usdoj.gov/crt/ada/adahom1.htm Angelman Syndrome Foundation, Inc. — www.angelman.org/ The ARC National — TheArc.org Assistive Technology Information — www.assistivetech.net Autism Society of America — www.autism-society.org/ Brain Injury Association — www.biausa.org Center for the Study of Autism — www.autism.org Center for Self-Determination — www.self-determination.com/ Consortium of Developmental Disabilities Councils — www.CDDC.com/ Disability Info — www.onarollradio.com/ The Epilepsy Foundation of America Web Site —— www.efa.org/ General Disability Information — www.disability.com/ Internet Drug List — www.rxlist.com/ MCARE — www.mcare.net/ National Alliance for the Mentally Ill — http://www.nami.org National Association of Developmental Disabilities Councils — http://www.naddc.org National Council on Disability — http://www.nod.gov/ National Institute of Health — http://www.nih.gov/health/ National Organization on Disablity — http://www.nod.org Prader-Willi Syndrome Association (USA) — http://www.pwsausa.org/ Quality Mall — www.qualitymall.org — This site provides information on best person-centered practices and innovations that promote quality of life for persons with developmental disabilities. It uses the concept of a shopping mall that allows virtual visitors to "shop" for best practice products and services to meet their needs. Resources for Parents of Children with Special Health Care Needs — www.familyvillage.wisc.edu/websites.html Social Security-Office of Employment Support Programs — www.ssa.gov/work/ResourcesToolkit/resourcestoolkit2.html Through the Looking Glass — www.lookingglass.org/ (TLG) is a nationally recognized non-profit agency and first National Resource Center for Parents with Disabilities. They provide direct services, training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issue. United Cerebral Palsy — www.ucpa.org/ U.S. Congress - Legislation — thomas.loc.gov US Government portal site for disability information — www.disabilityinfo.gov/ Virtual World Congress & Exposition on Disabilities — www.vwcdexpo.com/ Children's SSI — SSA Adopts New Rules for Evaluating SSI Childhood Disability Age Group Tables Describing the New Functional Equivalence Domains Used in Determining Functional Equivalence for Childhood SSI Disability Social Security Administration Questions and Answers About the New SSI Childhood Disability Functional Equivalence Rules |
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